As healthcare enters a new era of consumerism, more and more systems are working to embrace principles of patient- and family-centered care. Many are working hand-in-hand with patient-family improvement partners to shape their transformation. The Experience Innovation Network conducted research to examine how leaders at hospitals, clinics, and health systems are engaging patients and families in improvement and transformation efforts, and how patients and families perceive those efforts’ effectiveness. We surveyed and interviewed more than 100 system leaders responsible for patient-family partnership, and surveyed and interviewed more than 50 patient-family partners.
Through our research, we found a fair amount of variation in the integration of patient-family perspective, influence, and advocacy into healthcare transformation. While most systems today receive patient-family feedback in the form of surveys and advisory councils, only an elite few have integrated patients and families as true co-architects of transformation. Those that have are embracing key principles of patient-family partnership:
- Engage patient-family partners across the spectrum from strategy to operations.
- Let patient-family partners influence both the what and the how of transformation.
- Prepare both patient-family partners and team members for effective collaboration.
- Create intentional strategies to include under-represented partners.
- Value patient-family partnership appropriately.
Download the report to learn more about the research results, examine best practices, explore patient-family partner perspectives, and understand the strategies to co-architect transformation.